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Thorn's picture
Thorn
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You're so Ugly your dog won't even play with you
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Well gang......I am pretty much not going to be in the bass playing world for a good while yet again due to this monster disease eating my rotator cuff to the point of tearing it. My left (fretting) arm is just messed up to no end. Each day it hurts more and has less and less range of motion. I am getting an MRI bodywide in a month, and I have to go to Shreveport, northern La....so I get to feel like a cajun yankie! Smile LOL


You know how you turn your hand, wrist and forearm out to fret? Me no can do without crying. So, to spite my best ever Thornitude efforts, sometimes its just not enough..Can they repair the tear? No, because Lupus and RA eat tissue and destroy it and because of that any reparation would be in vane eventually. The news is replacement...So, I'll let you all know when the actual deal happens so you can keep me in your thoughts..I do not do well at all with any kind of surgery. I died the last two times...Course I came back cause trust me nothing celestial or hellatious wants me..LOL


I am still trying so hard to keep the faith...TRYING! Smile

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THORNITUDE!!!! continuing to

THORNITUDE!!!!


continuing to pray for you and send poz vibes your way.

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mattnash
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You're so Ugly your dog won't even play with you
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I'm at a loss for

I'm at a loss for words.


Hoping for the best, sister.

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jefff100
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You're so ugly, when you were born they put tinted windows on your incubator.
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Will keep you in my prayers

Will keep you in my prayers for strength and healing.


Jeff

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You're so ugly, when you were born the doctor took one look at you and slapped your parents.
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Make 'em wonder how you

Make 'em wonder how you recovered completely


prayin' for ya sis

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You're so Ugly your dog won't even play with you
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Man. When bad things happen

Man.


When bad things happen to good people...


I don't understand it.


Praying for you is all I can do. Just know it.

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You're so Ugly your dog won't even play with you
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I have nothing but faith

I have nothing but faith bekah.... thornitude will prevail

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You're so ugly, when you were born they put tinted windows on your incubator.
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Will continue to pray for

Will continue to pray for you. I go to the rumatologist on 6/1 for joint pains in hands/shoulders/elbows and hips.


Really sux.....but.....


Kepp the faith....and the Thornitude.....

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silverSurfer
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Hang tough Bekah

I just had rotator cuff problems, including torn tendon.


Know the pain.


Hang in there

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Thorn's picture
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You're so Ugly your dog won't even play with you
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Thank you all for the

Thank you all for the wonderful love! 


 


This post was originally in early April.  I am sorry to report that because of my insurance lack and this being done through the state, I have still not had the MRI or any replacement done.  I just have learned to deal with this the best that I can.  Sometimes I have a few days where it's tolerable and I can manage....Right now, nothings changed.  The waiting game is hard because I know for every month they make me wait the more and more tissue gets damaged. 


SWS, what did you find out?  Rheumy's can be a pain in the butt sometimes, but some of them are very dedicated and really help.  I was blessed that mine does one day a week at the charity hospital and I didn't lose him.


PRaying for you brother!


Surfer, yeah, it's just so painful...Are you feeling any better? 


My next appt is the end of this month...One of the other things that we'll be covering is the lupus is harming my kidneys and we are trying to avoid more harm.  Not sure what will happen on this visit.  He's just as angry and frustrated as I am on the amount of time it takes to get help. 


 


Keep me in your prayers guys!


 


Also, my best friend Kay is in a bad, bad way...Keep her in your prayers too if you don't mind.....She's been staying with us about three weeks.  I'd say more but it's a very difficult situation with a lot of private issue to it...She's hurting!


 


Love you guys!

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Thorn's picture
Thorn
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You're so Ugly your dog won't even play with you
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UPDATE

Sad( Sad(  Well, wish I had good news but I don't.  Finally getting the MRI in Lafayette sometime this month, but now I have to have skin biopsies.  Extensively.  Not sure when that will happen either.  That is the crappy part....they tell me all this stuff and my stress level goes up to a million waiting to see WHEN it will happen and why they think I need it.  The only thing he said is that my skin color is not normal and that there is something wrong with my arms and hands.  I talked to my other regular doc and she thinks he's leaning towards not cancer (which I heard biopsy and that's my thought) but rather blood vessel destruction or possibly something associated with my kidneys.  Either way it's wait and wait some more...I thank you guys for your prayers and concerns.  Also need to sell the Dean and the amp soon.  Can't afford to keep it, can't play it,so why cry? (Because I love it!)....God will help me out, he's never failed me yet...It's just hard to keep rolling but somehow we all do! 


 


Bless ya guys!

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Thornatude Rules!  Thanks for

Thornatude Rules!  Thanks for the update, sucks, but much appreciated for keeping us in the loop.

Grin's picture
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If ugliness was a crime, you'd get the electric chair.
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Trust in Him.

I have no idea what you are going through, not for one minute. I am praying for you, and will continue to do so.


stay strong and believe.


PRAY BELIEVING.


if you will read John 16:33, i go to it when i feel defeated.


you will be back playing, i know it.


don't quit.....do i have to get you fired up....because i will!!


i got a whole list of Things to fire Thorn up about, just sayin ...ya know, in case i ever need it Wink


some of them i can't even say on here....i'll PM them to you if i see any sign of let up Smile


Love ya friend.


 


 


 

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You're so Ugly your dog won't even play with you
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Love ya', sister. Praying for

Love ya', sister.


Praying for you as always.


Sad

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slade's picture
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You're so Ugly your dog won't even play with you
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damn mamma, you're in my

damn mamma, you're in my thoughts and prayers. keep yur chin up!!

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Thorn's picture
Thorn
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You're so Ugly your dog won't even play with you
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Thank You

Thanks DThraco for the encouragement!  Thanks Grin for the word!  I will check my PM's...:)  Thanks for your prayers FM!  :)  Thanks for yours also Slade!  Smile


 


Well, I hate to do this, but again more news that I am afraid could be really bad, but I think the fact that there is a glimmer of hope is what I'll stick to.  Had a follow up Wednesday and the other doctor got the lab results for the kidney function test and it was 40% function loss.  The culture showed the same bug that landed me in the hospital two years ago with all of this.  They seem to think it's a huge culprit to the Lupus and RA.  I am going to be on a loop of specialized anti-biotics designed to kill this bug, but it could take months.  That's okay with me!  Long as there is a chance it will end about half of the suffering I am stoked!  I hate to know my kidneys are failing because that is a serious side effect of Lupus.  But, because it's a bug in my bloodstream that may be killed, there is hope it can end at least part of this situation for me.  Of course, the Lupus is here to stay, but if I can stay a step ahead of it, that's the key!  They did tell me the fatigue, the loss of appetite, and some of the joint pain could stop with this bug dead!  YAY!  So, keep those prayers coming!  Skin biopsy is scheduled for August and that may also show that this bloodstream critter has caused some blood vessel damage and it could be reversible to an extent, and most assuredly would not advance further if that's the case...let's hope! 


 


Thanks you guys!  You all ROCK! 


 


LOVE BEKAH

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